Monthly Archives: February 2012

We Don’t Talk No Baby Talk Round Here!

Do you remember the days when people spent more time raising their own children than telling other people how to raise theirs?  When no one particularly cared what brand of baby bottles you were using, whether or not you breastfed a respectable period of time, what philosophy of child-rearing you subscribe to, or how much TV you allow your kids to watch?  Yes, I know that everybody has always had an opinion.  That certainly hasn’t changed.  But everyone didn’t seem to be quite so determined fifty years ago to impose it on others.

I look at blog posts, education journals, and parenting articles and I see a lot of highly vocal parental pride.

We are believers in attachment parenting.”

We share a ‘family bed.'”

“We live an organic lifestyle.'”

“We breastfed exclusively for two years.”

Please do not misunderstand me.  I have no contempt whatsoever for these parenting styles and practices.  And I’m all for people raising their children with thought and a deliberate attention to their children’s needs.  It’s the tone of moral superiority some proponents of various parenting theories get that unnerves me.

I came across one such sound bite the other night.  Actor Neil Patrick Harris was doing the obligatory parental bragging about his twins and boasted that his family has a “no baby talk” policy.

Now when I say I’m annoyed with this, please do not interpret that as me being all kinds of upset with Neil Patrick Harris.  He isn’t the first person to say it, and he is in all likelihood a perfectly nice man who clearly adores his children.  He simply repeated a phrase that is echoed by many parents –some of whom are excessively confident in their child-rearing convictions.  I’ve been guilty of it too, so let’s not run out and throw stones.  We’re none of us perfect — which is precisely my motivation for writing this.

As a teacher and a parent of both a highly verbal, early talking child and a child with an autism spectrum disorder with severe language delays, it annoys me when people self-righteously proclaim they “don’t speak baby talk” to their children or that their children are so verbal now because they didn’t then. Language acquisition is so much more complex than that.  Children thrive the more they are spoken to and interacted with period, no matter what the language or style of speaking.  There are behavioral studies in linguistics that demonstrate high-pitched speech toward infants is normal across most cultures.  It appears to be somewhat instinctive.  And, really, there are an awful lot of brilliant and articulate men and women throughout history whose mothers and fathers spoke sing-song silliness to their beloved babies.

Neil Patrick Harris obviously was not discussing autism or special needs conditions.  Nor are most of the “no baby talk” proponents.  But when they make these statements,they are implying that baby talk is somehow harmful to typical childrens’ language development.   Parents whose children are language delayed or simply not as impressive as their more precocious peers, have now been put on notice that they are somehow to blame for this.

Ditto for TV watching.  Yes, yes, I know all about this debate as well and have read the same studies as you have.  And, certainly, children are much better off running around outside making mud pies than watching cartoons.  However, I do not buy the argument that children who’ve seen a little television are miles behind in their development.  I – and most of my friends – grew up watching an awful lot of Sesame Street, Mister Rogers, The Electric Company, and so forth.  In the evenings, I loved The Dukes of Hazard and Charlie’s Angels.  Despite my obviously intellectually deficient childhood,  not only do I know how to wield a library card, I also managed to graduate college.  So I don’t buy the “developmental delays are caused by watching too much television” argument either.  The same thing goes for children who were bottle fed, made to sleep in their own beds, or given processed food once in a while.

When people have misconceptions about the causes of developmental delays (or the lack of excessive genius even), I get tense.  And my opinion itches to be set free.  Because having it implied that you are to blame for a child’s delays hurts – and hurts needlessly.  When you say to a parent of a child struggling developmentally that they should start or stop doing some particular thing, you are possibly coming at someone who lives with self-doubt every day.  We all wonder what we could have done or could do better.  We question our decisions.    And some may wonder if it really was Yo Gabba Gabba that caused their child’s autism after all.  (For the record?  It wasn’t.)  The truth is that, with the exception of severe neglect and malnutrition,  most developmental delays have a physiological or genetic cause.  Despite the abundance of information proving that, people still feel free to share their “expertise” with hapless parents everywhere.

Having a developmentally delayed child is much like standing in dirt crossroad in the middle of nowhere.  The right path is not clearly marked.  We try to peek a bit down every road to determine the best one to take.  There are few road signs and no mile markers. You set off down the road you have carefully chosen.  You hear the people off in the distance who took other paths.  Some of them – whose proximity you can’t quite determine – are reporting how terrible their journeys are.  Some of them are joyfully shouting how pleased they are with theirs.  You can’t tell who is closer or farther away.  With each successive voice added, you are left standing alone on the road trying to determine if you should begin making your way back to choose another.  You are left amidst a cacophony of voices shouting at you to head in their direction.  But, in the end, you are still standing on that road all alone, tightly holding the hand of your child while trying to appear confident.   It’s a frightening and lonely feeling.  One no parent will ever forget.

And the thoughtless comments and boasting of others can take you right back to that road in that moment of indecision.

Here’s what we know for certain about raising children:

1.  They need to know they are loved and valued.

2.  They need to be protected from illness and harm.

3.  They need clothing, nourishing food, and shelter.

4.  They need an appropriate education.

5.  They need opportunities to play and safely explore their world.

That’s about it.  It doesn’t matter what race, religion, or tribe you hail from, this is what you need to grow into a healthy, well-adjusted adult.  And I just want to take a moment to say to all of the parents out there whose children are receiving these five basic things:   You are a good mom.  You are a good dad.  Your children are who they were meant to be all along.  You’re doing a good job — not matter who is suggesting otherwise.

And I’m going to try to say it to myself more often – the me who worries, overanalyzes, and doubts.  The me who believes it easily of others but finds it harder to believe it of myself.   For, like all of you, I’m really doing the best I can.

“In spite of the six thousand manuals on child raising in the bookstores, child raising is still a dark continent and no one really knows anything.  You just need a lot of love and luck – and, of course, courage.”  ~Bill Cosby, Fatherhood, 1986

So, what annoying things have been suggested to you for better raising your special needs child?

From Autism Speaks Official Blog: A Sister’s Response to My “Silencing Ourselves” Post

A Sister’s Response…  Here’s a response to my post “Silencing Ourselves: A Plea for Civility to the ASD Community” from a sister’s point of view.  This is a guest post on the Autism Speaks official blog by Ali Dyer, a Social Media Coordinator for Autism Speaks.

This includes a downloadable “Sibling Support Tool Kit” to help kids aged 6-12 who have a sibling with autism.  It is a guide to help parents assist siblings with their feelings about a brother or sister’s diagnosis.

http://blog.autismspeaks.org/2012/02/03/silencing-ourselves-a-sisters-response/

(Giveaway) Book Review: In His Shoes by Joanna L. Keating-Valasco

Note:  I was contacted by the author Joanna L. Keating-Velasco with a request to consider this book for review.  After accepting, she sent me a free copy for review.  This is the copy that I will be giving away to a lucky reader.  Gently used, I promise.  I received no other incentive or promise of blog promotion for my review.

Because of the staggering numbers of autistic kids who are being bullied in school, In His Shoes: A Short Journey Through Autism appealed to me.  And, while this is not a book about bullying, it is a book that could help prevent or alleviate bullying of ASD kids.

In His Shoes:  A Short Journey Through Autism is written for a middle school audience.  The book is arranged in chapters containing vignettes of daily experiences of a 13 year-old autistic boy named Nicholas.  Nicholas speaks, but is not conversational.  He suffers from sensory integration issues and is often quite frustrated at his inability to communicate his thoughts and needs.  Nicholas is enrolled in a self-contained classroom, but attends inclusion classes to learn and socialize with typical kids.

Through the vignettes, we observe Nicholas as he experiences many things common to autistic kids.  We also see the experiences of the typical kids who interact with him.  Which is important.  It can be hard, when worrying and hurting for your bullied child, to remember that kids are kids and usually do not have the knowledge or life experience to understand our children’s eccentricities which do seem weird to typical kids.  He (and they) experience such things as:  transitioning to middle school, meeting new people, meltdowns, food aversions, being taken advantage of, bullying, birthday parties, being talked about, sibling relationships, sensory overload, adapted curriculum, going to the dentist, and more.  Following each vignette, is a “Points to Ponder” section of thought-provoking discussion questions.

I particularly like the design of this book.  Having worked with thousands of middle schoolers, I can tell you firsthand that middle schoolers do not care about autism.  Middle schoolers care about middle schoolers.  They are still very self-centered at this age.  It isn’t that they don’t care when faced with another person’s difficulties.  It is that they are mostly oblivious to them.

When you want to reach the hearts of a group of 11-13 year-olds, you have to first put them in the other person’s shoes.  This is what Keating-Velasco does with the aptly named In His Shoes.  Each of the “Points to Ponder” questions asks students how they would feel if faced with the same situation.  The questions are excellent, and I can tell you from experience that they would start a wonderful classroom discussion about tolerance, compassion, and bullying.  Middle schoolers actually love to discuss these issues – especially when given an opportunity to share their opinions!

I see In His Shoes best being utilized in a group setting.  It would be an ideal book to use in 15-20 minute segments.  I could see youth groups, peer counseling groups (student led school guidance activities), or classroom teachers using it.  It is quite the thing these days to have built into the school schedule advisor-advisee periods – usually once a week or during a short homeroom period – when teachers or guidance counselors lead discussions about topics such as this.

If you are a parent whose ASD child is transitioning to middle school or having problems in his/her school, I would take a copy of this to the guidance counselor or principal and ask if they might be willing to use this with the students.  I would go that route first rather than the classroom teacher, as approval would no doubt be needed first.   This book might also be useful to put in the hands of siblings of ASD kids (or their friends) who are having difficulty understanding a brother or sister’s needs.

Joanna L. Keating-Valasco also has a similar book geared toward elementary students.  As my teaching experience has been only middle school for the past 14 years, I decided I would best be able to evaluate this book.  But it might be an option if your child is in elementary school.

In His Shoes: A Short Journey Through Autism is a book written with a specific purpose – opening the hearts and minds of middle schoolers to the experience of kids with autism.  Based upon my professional experience, I think it would do an admirable job of doing just that.  Highly recommended.

The author’s website and information for ordering:  http://aisforautism.net/.

If you would like to enter to receive a free copy of In His Shoes, please leave a comment below.  Must be received by February 9, 2012.  (Planning to simply draw a name out of a hat!)  Question:  Have you (or would you consider) visiting your child’s classmates (or having guidance assistance) to explain his or her ASD condition?  Why or why not?  And, if you did, how did it go?  

Silencing Ourselves- A Plea for Civility in the ASD Community

Poking around the autism blogosphere last night, I came across some commentary that unsettled me.

In one thread, a mother of a young autistic boy, asked  if anyone knew of a DAN doctor near her city who didn’t have a long waiting list.  It was a simple and direct question, not inviting a debate or attack upon her online person.  But this unfortunate visitor had popped into the wrong thread.  She was immediately attacked for even thinking about trying a biomedical approach to helping her child.  Phrases along the lines of “b****hslap Jenny McCarthy”, “autism cult”, “inflict that upon your child”, “stupid”, etc. began flying.   I felt sorry for that mother.  She probably, like many of us, is desperate to try anything to help her child.  The fact that she was even on the internet looking into options for him shows her love.  Sorry parents simply aren’t in these forums, blogs, and social networking groups.  They’re too busy neglecting their children.

On the flip side, I’ve seen parents who make mention of their child refusing to eat anything but bread get trounced by biomedical devotees condemning them for not being willing to “cure” their child by trying a controversial treatment.  The implication being that one day when that parent is “willing” to help their child, they will look into it.  How unconscionably cruel.

I have seen parents marveling at their children’s progress since beginning ABA therapy, only to see them attacked for “inflicting” a therapy that amounts to little more than “dog training”.  Is it so difficult to imagine that some therapies are beneficial to some but not others?

I, along with others, have been chided for using the word “autistic” instead of using “people first language”.  As though parents who use the word “autistic” don’t put their children first.

I have seen parents and teachers denounced for not wanting to implement full-inclusion for their autistic children.  For me, that’s a choice about what is best for the child.

And, most recently, the “neurodiversity” movement has been blasting well-intentioned parents.  Please do not misunderstand me.  I’m a teacher.  I’m all for appreciating the diversity of children and promoting acceptance.  I like some of the positive things that the concept of neurodiversity can bring about.

But neurodiversity, in my opinion, does not have to preclude parents wanting to help their children fit in a bit better in a complicated world.  Recently, I’ve come across many threads of angry people in our community insisting that parents of autistic children be happy about the challenges facing their children.  It seems there is great pressure these days to deny the difficulties, disappointments, fears, and sadness associated with the loss of a typical childhood.   Parents feeling sadness and worry are encouraged to deny there is any grief associated with it whatsoever.  Told to buy perky t-shirts and snarky bumper stickers.   Some of the commentary associated with such discussions barely stops short of suggesting these people don’t really love their children for who they are.

And after months and years of reading such attacks disguised as “commentary” and “debate”, it has occurred to me that we are spending a great deal of our time teaching people that it is in their best interest to shut up.

After all, while many of us are confident in being vocal, I would  guess that the vast majority of people in our community are simply everyday people.  People who have no desire to control the parenting decisions of others.  People who do not purport to know definitively who is right in any of our controversies.  People who are simply trying to do what their instincts say is right regarding their own children.  And, like most folks, these everyday non-blog espousing parents have no desire to ignite a debate or have their emotions stomped into the ground.  Sheesh.  Parenting and advocating for a special needs child is hard enough without putting yourself out there like that.

So I find myself wondering why we, by attacking people whose approach to therapy and educational decisions for their children is different from our own, think we are somehow furthering the cause of autism?  A well-intentioned “Hey, you might want to check out this article that has some interesting things to say about blah blah blah” would be more beneficial, I think.  I know I’d be much more willing to hear another viewpoint expressed that way.

For, by jumping people for their thoughts and decisions about raising their autistic kids, all we are doing is silencing them.  We are discouraging them from sharing any more.  And we are teaching those not willing to endure the same attack that they should go someplace else.  Silencing their voices.  Problem is, I can think of a lot of disturbing examples throughout history when silence was encouraged of dissenters.  None of that turned out so well.

I worry about the degree of politically correct autism discussion pushed on us these days.  You can hardly turn around without offending someone in the ASD community.  I worry about the parents who feel ashamed for considering or trying a therapy that others don’t agree with.  Saying that you have concerns about an approach is one thing.  Suggesting that they are abusing or not loving their children is another.  I worry about those parents who might be afraid to express their genuine grief out of fear of not “embracing neurodiversity”.  I worry about the silence that will follow.  I want to hear all of our voices.  Because, if we already knew all of the answers, we wouldn’t need these discussions to begin with.

In the discouragement of telling the truth about our experiences,  I wonder if autism will be granted even greater powers of silence than it already has.

For autism has already silenced too many of our sons and daughters, brothers and sisters.

We must stop silencing each other.

If you liked this post, you might enjoy:

“This is MY Reality” by Sunday Stillwell.

 “Stirring Up a Hornet’s Nest:  Free Advice and the Vaccine Controversy” or “Reply to a Disgruntled Reader“.  

Or you might like (language alert!) this post by Jillsmo:  “Autism and Vaccines: My Opinion”.

Or even this post by From the Inside Looking In:  “Anti-That-Kind-of-Parent”.